“It is law, finally. The single text on rare diseases has just been unanimously approved in the deliberative session of the commission. Concrete help for patients and their families and an example of good policy. to system the existing, update the plan for rare diseases every three years. The text is a new beginning, the rightness of a health service is measured by how we treat rare diseases. Today is a good day “. This was stated by the president of the Hygiene and Healthcare Commission of Palazzo Madama Annamaria Parente.
Binetti (UDC), a law that gives dignity to the sick
“The Consolidated Law on Rare Diseases, of which I was rapporteur and one of the first proponents, was unanimously voted today by the Senate Health Commission in its deliberative session. It is an enormous satisfaction, now we need to speed up the implementation decrees. It is a measure which finally gives dignity to people with rare diseases and their families “. Thus Paola Binetti, UDC senator and rapporteur of the Consolidated Law on Rare Diseases, approved today definitively.
De Poli (Udc), is a victory for patients
“The single text on rare diseases has just been approved in the Senate, which absorbs several bills, including the one I presented at the beginning of the legislature. It is a victory for patients, for their families, for the whole of Italy. ‘a very important step forward for the 2 million rare patients in Italy “. Thus the UDC senator, Antonio De Poli, comments on the approval, in the deliberative session, in the Health Commission in the Senate, of the Consolidated Law on rare diseases.
That of a law on rare diseases, he adds, “is a battle that the UDC has been carrying out for years and that finally crosses the finish line”. “In this year and a half of pandemic – continues the senator – we have learned to fight and oppose a common enemy. Even today, with this concrete result, we demonstrate how important it is to team up, beyond political colors, to defend the right to health of all citizens and leave no one behind “. The new law, concludes De Poli, “will guarantee adequate assistance and care to patients, support for their families and above all will encourage the production and research of so-called orphan drugs which, in the absence of incentives, would not be profitable”.
Source From: Ansa
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