(ANSA) – ROME, NOV 26 – In Rome the sixth edition of the Patient Advocacy Network, organized by Altems-Università Cattolica (High School of Economics and Management of Healthcare Systems) with the unconditional support of AstraZeneca. Two days of training workshops “which see Patient Associations actively involved, increasingly prepared for an active role in the governance of the health system”.
This year, the first edition of the post-pandemic project sees the participation of a growing number of associations representing patients with chronic, oncological and haematological diseases including: Respiriamo Insieme, FederAsma e Allergie Odv, Italian Association of COPD Patients , FAND (Italian Diabetics Association), FEDER (Emilia Romagna Diabetes Federation), Kidney Disease Association, FIR (Italian Kidney Foundation), aBRCAdaBRA Onlus, ACTO Onlus, Loto Onlus, Europe Woman and Europe Man, Meet Woman, AIL (Association Italiana against Leukemia-Lymphomas and Myeloma), Codice Viola, LES Italian ODV Group, Italian Apnoic Association, AISC (Italian Association for Cardiac Compensation), Italian Foundation for the Heart.
This sixth edition is dedicated to ‘The future of patient association management: the role of networks also at European level, the data driven strategy’. “In this new scenario that is taking shape, also in the light of a reorganization of the NHS thanks to PNRR funds, it is desirable that those who play a role in representing patients and citizens have more and more skills, techniques and tools to allow an effective dialogue with both national and regional policy makers: main actors in the definition of health policy “, says Americo Cicchetti, director of Altems. From a research carried out by Altems during the first wave, it emerges that 42% of the initiatives launched by patient associations concerned ‘institutional activities’, that is, advocacy actions carried out to deal with the emergency by raising the awareness of institutions for the provision of certain services. useful for the management of one’s own pathology “, explains Teresa Petrangolini, director of the Patient Advocacy Lab of Altems, Catholic University.
For its part, “AstraZeneca has always concretely promoted the role of patients and their inclusion in the decision-making processes concerning the future of the health system”, comments Ilaria Piuzzi, Head of External Communication and Patient Advocacy at AstraZeneca Italy. “For this reason, giving continuity to projects like this is fundamental for us so that patient involvement becomes systematic both at national and regional level”. (HANDLE).
Source From: Ansa